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Condition
Crouzon Syndrome
Crouzon syndrome is a rare genetic condition that causes certain skull bones to fuse too early and affects the shape of the child's head and face. Shriners Children's craniofacial specialists offer individualized treatment for this condition.
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Condition
Mobius Syndrome
Moebius syndrome is a rare condition, present at birth, caused by the absence of facial nerves that control certain facial expressions and eye movements.
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Service
Hearing Services
Shriners Children's offers hearing services to help screen and assess problems and possible hearing loss that may be associated with craniofacial and cleft conditions.
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Service
Upper Airway Imaging
The upper airway includes the nose, nasal cavity, mouth, throat (pharynx) and voice box (larynx). Upper airway imaging looks for narrowing in these areas, which can be common for children with craniofacial and neuromuscular conditions.
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Service
Child Life Services
https://www.shrinerschildrens.org/en/Pediatric-Care/Child-Life-ServicesChild life professionals at Shriners Children’s take pride in focusing on the "above and beyond" aspects of medical care for our patients. From procedure support to camps, they are ready to advocate for your family.
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Affiliate Care
Pediatric Specialty Care in Florida
https://www.shrinerschildrens.org/en/Locations/FloridaPediatric specialty care for children throughout Florida.
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Condition
Stickler Syndrome
Stickler syndrome, a genetic disorder, involves larger eyes, small nose and chin, cleft palate and joint issues. Craniofacial surgeons repair facial structure and palate. Orthopedic surgeons and rheumatologists treat bone and joints.
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Condition
Nail-Patella Syndrome
Nail-patella syndrome is a rare condition causing irregular growth of the nails, knees, elbows, and pelvis. Symptoms vary in severity, even among members of the same family, and treatment includes bracing or surgery.
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Condition
Ehlers-Danlos Syndrome
Ehlers-Danlos syndrome (EDS) affects the connective tissues, causing joints to become lax or unstable and abnormal skin elasticity. There are varying types. Shriners Children’s works to manage symptoms and improve overall quality of life.
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Condition
T.A.R. Syndrome
Shriners Children physicians treat TAR syndrome, a rare disorder present at birth characterized by low levels of platelets in the blood and absence of the bones of the forearms.