We specialize in treating rare conditions like arthrogryposis with a team approach.

Arthrogryposis is a number of rare muscle disorders that can cause stiff joints and abnormal muscle development in children. It occurs in about 1 in every 3,000 children. The name comes from the Greek word meaning “curved joint." Children with arthrogryposis are born with a limited range of motion in any of all of the following:

  • Wrists
  • Hands
  • Elbows
  • Shoulders
  • Hips
  • Knees
  • Ankles

In some cases, motion is so limited that the joint is actually fixed, meaning there is no range of motion at all. There is no known cure for arthrogryposis, and the exact cause of arthrogryposis is unknown.

Shriners Children's experienced physicians have treated thousands of children with arthrogryposis. We bring a proven, innovative, team approach to treatment that is focused on one main goal: giving children the best quality of life so they can achieve their goals.

Your physician will confirm a diagnosis of arthrogryposis using blood test, X-rays or muscle biopsies. Our advanced motion analysis center technicians can help determine the correct course for care. Treatment options may include splinting, casting, physical therapy and, in some circumstances, surgery.

Our Family-Centered Care

Our philosophy is to consider all of the options for your child. Together, we’ll create a treatment plan that is the best fit for your child’s age, the severity of their condition and the activities they love.

A diagnosis of arthrogryposis can be stressful for the entire family. Those stressors can include fears about your child's future and insecurity about making the right decisions. Be reassured that if your child is diagnosed with arthrogryposis, you'll have a Shriners Children's care team to guide you. Your child’s surgeons, physical and occupational therapists, and other care providers understand the concerns of children and parents navigating this journey.

We’ve seen children with arthrogryposis successfully progress through childhood, as they become active preschoolers, elementary school gymnasts, and teens confidently socializing with friends and succeeding in life.

Specific treatments and services may vary by location. Please contact a specific location for more information.

If you make it to Shriners Children's, you can take a deep breath. They're going to take care of you in every way possible.
Danielle, St. Louis
patient during motion analysis testing

Advance Motion Technology Helps Find the Best Options

The Shriners Children's motion analysis centers (MAC) use advanced motion capture cameras to analyze the movements of the children as they walk, reach, bend and twist. These high-tech studies help physicians and therapists determine if a child will benefit from surgery, rehabilitation or prosthetics and orthotics (POPS).

innovative treatments

View All Related Treatments

Splinting

Customized splinting is a common treatment at Shriners Children's for a variety of orthopedic conditions and injuries. From hands to arms to feet, our specialists will create the best splint to meet your child's needs.

Next Steps

Request an Appointment

Families and caregivers seeking treatment should start by contacting us for an appointment.

Log in to the Patient Portal

Parents and guardians of existing patients can email, request records, schedule appointments and more.

Refer a Patient

Physicians and healthcare providers can request appointments, start transfers or contact us with questions.