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A Generational Story of Community

Ethan is a 16-year-old Shriners Children’s Philadelphia patient who traveled for his first visit in May 2023 for scoliosis care and treatment.

Scoliosis, a curvature of the spine, can curve the spine to make a C shape or S shape, rather than growing in a straight line. One day Amy, Ethan’s mom, noticed he could not stand up straight and that his hips were not aligned. Upon getting a checkup, he had a 53-degree curve to his thoracic vertebrae and a 20-degree curve to his lumbar vertebrae.

Amy heard about the scoliosis treatment at Shriners Children’s Philadelphia in a social media group, where she connected with another parent of a child treated at our location. Ethan traveled all the way from Alabama to Pennsylvania because the Shriners Children's Philadelphia team offered comprehensive spine care and was able to schedule him for an appointment faster than any hospital near him.

This wasn’t the first time that they heard of Shriners Children’s. Amy's father was a member of Shriners International, specifically Zamora Shriners. In a full-circle moment, two Zamora volunteers from the chapter's Drivers Program transported Ethan and Amy the entire way from Alabama to Philadelphia and back – a 13-hour drive each way.

I am so grateful that I don’t have the financial burden, and for the drivers and what they do.
Amy, Ethan’s mom

Once they arrived for their outpatient appointment with Amer Samdani, M.D., chief of staff, they discussed all the options of care. Due to the severity of Ethan’s spinal curvature, he skipped bracing and underwent spinal fusion surgery. Spinal fusion surgery is used to stop the spinal curve progression as a child continues to grow. Ethan’s surgery was successful. Dr. Samdani and the surgical team straightened his spine, which ultimately helped minimize pain and improve his posture. Dr. Samdani said, “I am very happy with the results we were able to obtain. Ethan is an excellent patient.”

Amy wants to give a special thank-you to Dr. Samdani, who she said was “amazing, very comforting and not rushed.” She also wants to thank Patrick, a nurse who went “above and beyond” to accommodate and care for both her and Ethan. Additionally, she wants to thank Jeanine, a respiratory therapist who was an “amazing bright light” throughout Ethan’s care. She said, “Ethan liked to keep his room dark, and she’d (figuratively and literally) brighten it up when she came in.”

She also explained that care manager/nurse Shannon and physician assistant Emily “kept [her] calm and informed in the months leading up to surgery by answering emails and questions through the patient portal.” Additionally, triage nurse Sloane “helped reassure both of [them] that he was healing well once [they] were discharged, again, via the portal.”

Thanks to Dr. Samdani and the team, Ethan can just focus on being a teenager. He can freely enjoy his hobbies of playing video games, pickleball and tennis, and serving on the production team at his church without fear of pain or discomfort. He feels that having surgery helped improve how his body moves and feels. 

Scoliosis Care at Shriners Children's Philadelphia

Shriners Children's Philadelphia offers world-class scoliosis care to patients from around the world. Watch to learn more about how our spine team provides personalized care for their patients which begins at their first appointment.
View Transcript

Amer F. Samdani, M.D., Chief of Surgery, Neurosurgeon:

When we look at our spine care, I'd say the number one factor that differentiates us from other institutions is we have an umbrella of care. When a child comes in with scoliosis or curvature in their spine, they're able to see the wide spectrum of different healthcare providers in that one single visit.

Josh Pahys, M.D., Pediatric Spine Surgeon:

At Shriners Children's, we have orthopedic spine surgeons, we have neurosurgeons. We all work together, take care of kids, and draw from both fields of expertise. The medical team here, the orthotist team here, the physical therapy team here, is at the top of their field. I think all of us are presenting at national or international meetings. We're publishing data that's changing the way that other centers around the country, around the world are taking care of patients. It's exciting to be a part of that.

Amer F. Samdani:

The standard of care for patients with scoliosis for the past 50 years has been a spinal fusion, but now patients have another option. We pioneered at our hospital and worked with the FDA in 2019 to get FDA approval for a non-fusion related treatment for these children called vertebral body tethering.

Steve Hwang, M.D., Neurosurgeon, Pediatric Spine Surgeon:

Vertebral body tethering is an innovative way to treat scoliosis. We make smaller incisions, put a screw into the vertebral body, which is the bigger part of the spine, and put an anchor that tethers kind of a rope that has a little bit of tension on it. That allows us to apply a force on one side of the spine so we can actually correct the scoliosis, allowing the child's growth to help correct the curve over time as well.

You want to identify the ideal time to perform that surgery if it's necessary to optimize the outcomes in kids.

Josh Pahys:

Everybody that's involved in that is really embodies the mission of the Shriners. They all come here every morning and leave every night with the same goal in mind is to take care of the patient and the family and it's one of the reasons why all of us come here and love working here is the team effort, the family effort that we put into it that I think really sets us apart.

Amer F. Samdani:

The most important thing is we are going to be by your side. Combine that with cutting-edge technology, with an environment that fosters patient-centered care, where patients truly feel that they're part of a larger family is what sets us apart.

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Meet Ethan

Thanks to Ethan's drivers, he was able to get to Philadelphia for spinal fusion surgery to help correct his scoliosis. See his journey through these photos.

Amer Samdani M.D., testing Ethan's reflexes on his bicep

Dr. Samdani tests Ethan's reflexes on his bicep and forearm during his checkup.

Patient Ethan with his two Zamora Shriners drivers.

Ethan stands with his drivers from Zamora Shriners ahead of their first drive to Shriners Children's Philadelphia.

Ethan and Amer Samdani M.D., smiling

Ethan smiles with Dr. Samdani after his surgery.

Patient Ethan with two Zamora Shriners in the lobby of Shriners Children's Philadelphia

Ethan smiles with his drivers from Zamora Shriners in the lobby of Shriners Children's Philadelphia ahead of their most recent drive back to Alabama.

Ethan and Amer Samdani M.D., looking at x-rays

Ethan and Dr. Samdani look at his X-rays to see how his spine has straightened.

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