Shriners Children's Provides Compassionate Care for Children with Neurogenic Bladder
The goal of our colorectal and gastrointestinal specialty program is to provide children with anal-rectal disorders advanced care and rehabilitation that frees them from social stigma and allows them to live and play like other children.
What is Neurogenic Bladder?
Neurogenic bladder is when the urinary tract is not working properly and causes the bladder not to empty as it normally would. Sometimes it is caused by a birth defect, usually one involving the spinal cord or as the result of a different problem. Neurogenic bladder can’t be cured but it can be managed with medication and intermittent catheterization. Only a small percentage of children with the condition end up needing major reconstructive surgery.
A common concern of parents is “Will my child still be in diapers when they are school age?” The short answer is most likely, no. Shriners Children's doctors will make sure that a child has the right treatment options to live as normal a life as possible.
How We Care for Children with Neurogenic Bladder
Treatment begins with a proper diagnosis, and the pediatric surgeons at Shriners Children's carefully evaluate each patient to develop an individual treatment plan. Shriners Children's can not cure neurogenic bladder, but we can provide all the tools necessary to manage your child’s condition. By protecting their internal digestive system and encouraging regular flushing of their system, we work hard to give a child as normal a life as possible.
We provide follow-up care to monitor your child’s health, prevent problems, manage symptoms and give your child the best quality of life.
Specific treatments and services may vary by location. Please contact a specific location for more information.
On the first visit, parents and children typically come for a group overview and educational presentation about bowel management. Our doctors and nurses explain the medicines, enemas and diets we use as treatment options. Each family has a one-on-one clinic visit with a provider from the program to make a plan for their child.
If referred to our hospital for a more complex condition or surgery, you and your child go directly to the one-on-one visit with one of our providers to build an individualized plan of care.
Sometimes, when deemed appropriate, your child may have bowel X-ray. This helps us with diagnoses and check whether your child’s plan is working. A nurse from our program will talk with you either in person or by phone to discuss your child’s results.
Our goal is for your child to empty their bowel daily with no accidents and to live with as few limitations as possible. Success depends on your child’s condition and following your plan closely.
Families and patients say that Shriners Children’s feels like home to them, and it's no wonder to us. We know that a child's needs go beyond the physical. Our care teams support their social, emotional and developmental health with patient programs and activities.
Dr. Hirose respected me as a mother and took my extensive knowledge of Jordyn’s medical condition into consideration during the decision-making process.
Shriners Children's provides specialty health care to children around the world. We offer a comprehensive range of treatments, services and support to improve the quality of our patients’ lives and help them reach their full potential.
{"items":[{"title":"Shriners Children's Chicago","image":"https://www.shrinerschildrens.org/-/media/images/shc/location-entities/chicago/chicago_hospital_exterior_961x640_65608.ashx","imageAlt":null,"text":"Pediatric specialty care for children throughout Illinois and beyond","ctaItem":{"ctaLinkIcon":"https://www.shrinerschildrens.org/-/media/icons/si-nonhero-icons-_-24x24px/solid-white-_-24x24px/mappin_24x24_whitesolid.ashx","ctaLinkText":"More About This Location","ctaLink":"/en/Locations/Chicago"},"itemId":"be4595bd-0b81-4f87-9e04-1a2141481d8a"},{"title":"Shriners Hospitals for Children Canada","image":"https://www.shrinerschildrens.org/-/media/images/shc/location-entities/canada/canada_hospital_exterior_961x640_65566.ashx","imageAlt":null,"text":"Pediatric specialty care for children throughout Montreal and beyond","ctaItem":{"ctaLinkIcon":"https://www.shrinerschildrens.org/-/media/icons/si-nonhero-icons-_-24x24px/solid-white-_-24x24px/mappin_24x24_whitesolid.ashx","ctaLinkText":"More About This Location","ctaLink":"/en/Locations/Canada"},"itemId":"e304f501-802a-473c-854b-e1e7274922bb"},{"title":"Shriners Children's Southern California","image":"https://www.shrinerschildrens.org/-/media/images/shc/location-entities/southern-california/front_of_building_961x640_60428.ashx","imageAlt":null,"text":"Pediatric specialty care for children throughout California and beyond","ctaItem":{"ctaLinkIcon":"https://www.shrinerschildrens.org/-/media/icons/si-nonhero-icons-_-24x24px/solid-white-_-24x24px/mappin_24x24_whitesolid.ashx","ctaLinkText":"More About This Location","ctaLink":"/en/Locations/Southern-California"},"itemId":"ffc85f4f-14e6-480d-80b2-456c9db492e9"},{"title":"Shriners Children's Philadelphia","image":"https://www.shrinerschildrens.org/-/media/images/shc/location-entities/philadelphia/philadelphia_hospital_exterior_961x640_65326.ashx","imageAlt":null,"text":"Pediatric specialty care for children throughout Pennsylvania and beyond","ctaItem":{"ctaLinkIcon":"https://www.shrinerschildrens.org/-/media/icons/si-nonhero-icons-_-24x24px/solid-white-_-24x24px/mappin_24x24_whitesolid.ashx","ctaLinkText":"More About This Location","ctaLink":"/en/Locations/Philadelphia"},"itemId":"4ba856fc-9284-4234-b570-0006dc4d792a"},{"title":"Shriners Children's Twin Cities","image":"https://www.shrinerschildrens.org/-/media/images/shc/location-entities/twin-cities/twin_cities_building_exterior_961x640_65422.ashx","imageAlt":null,"text":"Pediatric specialty care for children throughout Minnesota and beyond","ctaItem":{"ctaLinkIcon":"https://www.shrinerschildrens.org/-/media/icons/si-nonhero-icons-_-24x24px/solid-white-_-24x24px/mappin_24x24_whitesolid.ashx","ctaLinkText":"More About This Location","ctaLink":"/en/Locations/Twin-Cities"},"itemId":"058ff587-891a-4c75-8853-9a15542fd911"},{"title":"Shriners Children's Northern California","image":"https://www.shrinerschildrens.org/-/media/images/shc/location-entities/ncal/sacramento_building_exterior_961x640_294.ashx","imageAlt":null,"text":"Pediatric specialty care for children throughout Northern California, Western U.S., Northwestern Mexico and Canada","ctaItem":{"ctaLinkIcon":"https://www.shrinerschildrens.org/-/media/icons/si-nonhero-icons-_-24x24px/solid-white-_-24x24px/mappin_24x24_whitesolid.ashx","ctaLinkText":"More About This Location","ctaLink":"/en/Locations/Northern-California"},"itemId":"6912ff77-30d5-4c8a-bf67-783c912358d0"},{"title":"Shriners Children's St. Louis","image":"https://www.shrinerschildrens.org/-/media/images/shc/location-entities/st-louis/st_louis_hospital_exterior_961x640_298.ashx","imageAlt":null,"text":"Pediatric specialty care for children throughout Missouri and beyond","ctaItem":{"ctaLinkIcon":"https://www.shrinerschildrens.org/-/media/icons/si-nonhero-icons-_-24x24px/solid-white-_-24x24px/mappin_24x24_whitesolid.ashx","ctaLinkText":"More About This Location","ctaLink":"/en/Locations/St-Louis"},"itemId":"5603c75f-6a8f-41e8-8d1a-a1b5e82b8940"},{"title":"Shriners Children's New England","image":"https://www.shrinerschildrens.org/-/media/images/shc/location-entities/new-england/springfield_building_exterior_961x640_63900.ashx","imageAlt":null,"text":"Pediatric specialty care for children throughout Massachusetts and beyond","ctaItem":{"ctaLinkIcon":"https://www.shrinerschildrens.org/-/media/icons/si-nonhero-icons-_-24x24px/solid-white-_-24x24px/mappin_24x24_whitesolid.ashx","ctaLinkText":"More About This Location","ctaLink":"/en/Locations/New-England"},"itemId":"0378db05-94c6-49b9-ba00-72d4317b4d4a"}]}
Colorectal and Gastrointestinal (GI) Care That Transforms Lives
Trouble with bowel control can lead to struggles at home, in school, in friendships, and with emotions, behavior and mental health. Many children can be more active, social, happy and independent if they have a plan for bowel management, and colorectal and gastrointestinal care that works specifically for them.
Rectal Botox injections relax the sphincter muscles slightly, making it easier for a child to pass stool. Shriners Children's considers this method before surgical options.
Alternatives to Rectal Enemas
Our team provides individualized diets, laxatives and psychosocial therapy to provide relief for children with constipation.
Anoplasty
Shriners Children's pediatric surgeons perform this surgery to correct anorectal malformations that cause painful bowel movements. It involves the reconstruction of the anus to stretch or enlarge the opening where stool drains.
Colonic Irrigation
This alleviates immobile stool in the colon, preventing bacterial overgrowth and colitis. Our team teaches parents to perform colonic irrigation effectively at home.
Colon Resection
Colon resections, also referred to as sigmoid resections or bowel resections, are performed by our pediatric surgeons. The procedure involves removing part of the bowel to treat and prevent diseases and conditions that affect the colon.
Gastrostomy Tube Placement
A gastrostomy tube (G-tube) is placed in the stomach as a feeding tube for children who cannot get enough nutrition by mouth. Shriners Children’s uses G-tubes for children with esophageal, stomach or intestinal problems.
Ileostomy
An ileostomy helps waste and gas exit the body without passing through the colon or rectum. An Ileostomy is typically used when a disease is preventing the colon from working properly or the colon has to be removed.
Ostomy Creation and Closure
Ostomy procedures change the way a child's urine or stool exits their body because of problems with their digestive or urinary system. Ostomies can be temporary or permanent.
Rectal Botox
Rectal Botox injections relax the sphincter muscles slightly, making it easier for a child to pass stool. Shriners Children's considers this method before surgical options.
Alternatives to Rectal Enemas
Our team provides individualized diets, laxatives and psychosocial therapy to provide relief for children with constipation.
Anoplasty
Shriners Children's pediatric surgeons perform this surgery to correct anorectal malformations that cause painful bowel movements. It involves the reconstruction of the anus to stretch or enlarge the opening where stool drains.
Colonic Irrigation
This alleviates immobile stool in the colon, preventing bacterial overgrowth and colitis. Our team teaches parents to perform colonic irrigation effectively at home.
Colon Resection
Colon resections, also referred to as sigmoid resections or bowel resections, are performed by our pediatric surgeons. The procedure involves removing part of the bowel to treat and prevent diseases and conditions that affect the colon.
Gastrostomy Tube Placement
A gastrostomy tube (G-tube) is placed in the stomach as a feeding tube for children who cannot get enough nutrition by mouth. Shriners Children’s uses G-tubes for children with esophageal, stomach or intestinal problems.
Ileostomy
An ileostomy helps waste and gas exit the body without passing through the colon or rectum. An Ileostomy is typically used when a disease is preventing the colon from working properly or the colon has to be removed.
Ostomy Creation and Closure
Ostomy procedures change the way a child's urine or stool exits their body because of problems with their digestive or urinary system. Ostomies can be temporary or permanent.
Rectal Botox
Rectal Botox injections relax the sphincter muscles slightly, making it easier for a child to pass stool. Shriners Children's considers this method before surgical options.
Next Steps
Request an Appointment
Families and caregivers seeking treatment should start by contacting us for an appointment.
