Rectal Botox
Rectal Botox injections relax the sphincter muscles slightly, making it easier for a child to pass stool. Shriners Children's considers this method before surgical options.
Caudal Regression Syndrome Care
Shriners Children's provides care expertise for children with caudal regression syndrome.
The goal of our colorectal and gastrointestinal specialty care is to provide children with anal-rectal disorders advanced care and rehabilitation that frees them from social stigma and allows them to live and play like other children.
What is Caudal Regression Syndrome?
Caudal regression syndrome is a disorder that impairs the development of the lower (caudal) half of the body and sometimes affects the gastrointestinal tract. Children with caudal regression syndrome may have abnormal twisting of the large intestine, an obstruction of the anal opening (imperforate anus), soft pouches in the lower abdomen that have popped out (inguinal hernias) or other malformations of the gastrointestinal tract.
Children affected are often constipated and may experience loss of control of bladder and bowel function.
What Are the Symptoms of Caudal Regression Syndrome in a Child?
- Lack of feeling in legs
- Constipation
- Urinary incontinence
- Fecal incontinence
How We Care for Caudal Regression Syndrome
Shriners Children's team of pediatric surgeons who specialize in colorectal and gastrointestinal issues can provide surgery to treat certain symptoms of caudal regression including abnormal twisting of the large intestine, an obstruction of the anal opening (imperforate anus) and soft out-pouchings in the lower abdomen (inguinal hernias).
If your child has trouble controlling their bladder, they may need a catheter to drain their urine. If your child has an imperforate anus, they may need surgery to open a hole in their intestine and pass stools outside of their body into a bag. Surgery performed to treat various symptoms usually resolves them completely.
If bowel and bladder function don’t fully recover, a child will be given a bowel management plan and followed closely by our clinical teams, including social workers, medical managers, physicians and others. Emotional or social counseling can help a child adjust to life.
We provide follow-up care to monitor your child’s health, prevent problems, manage symptoms and give your child the best quality of life.
Specific treatments and services may vary by location. Please contact a specific location for more information.
Dr. Saadai is amazing. He’s a friend. And this may sound strange, but Shriners is like a second home to me.
Locations for Caudal Regression Syndrome care
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Shriners Children's provides specialty health care to children around the world. We offer a comprehensive range of treatments, services and support to improve the quality of our patients’ lives and help them reach their full potential.
Pediatric Surgeons that Specialize in Colorectal Care
Our pediatric surgeons are recognized worldwide and specialize in care for children experiencing issues with their bowels and digestive system, among other conditions. They work to give children improved health, better function and less pain, while also giving children greater independence, ability and confidence.
Innovative Treatments
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Alternatives to Rectal Enemas
Our team provides individualized diets, laxatives and psychosocial therapy to provide relief for children with constipation.
Next Steps
Request an Appointment
Families and caregivers seeking treatment should start by contacting us for an appointment.
Log in to the Patient Portal
Parents and guardians of existing patients can email, request records, schedule appointments and more.
Refer a Patient
Physicians and healthcare providers can request appointments, start transfers or contact us with questions.