Congenital Hand Differences

Welcome to the Congenital Hand Differences Resource Site!

Congenital Hand Differences (CHD) refers to all physical differences of one or both hands, arms or shoulders that are present at birth. Acquired hand differences are hand differences that are caused by injury or disease after birth. Children who acquire differences may have challenges similar to children with CHD.

Congenital Hand Differences can be the addition or enlargement of features, fused or webbed features, and/ or the absence or reduction of features. “Features” refer to all anatomical structures of the hand, primarily bones, muscles and skin. Some CHD have specific names like “macrodactyly” or “syndactyly.” Other conditions are called “limb deficiency.” Others relate to conditions in the body, such as Poland syndrome or Thrombocytopenia-Absent Radius. Some CHD are genetic.

Parents of a child with CHD have common areas of concern regarding the cause of the CHD, and their child’s future function or quality of life. The explanation or reason for a CHD is usually unknown. It is usually not the result of behavior or action that anyone did or did not do. The Parent Resource Page on this site addresses parental concerns in detail.

The most important thing to know is that your child can do and will do all of the activities he/she wants to do! Your child may benefit from different supports such as adaptive strategies, assistive devices, prosthetic devices, therapeutic interventions, and/or surgical interventions. Everyone at Shriners Children’s Hospital’s – Northern California is here to help along the way.

This webpage is intended to serve as an accessible format to address parent concerns when raising their children with CHD. The “We” used throughout the website refers to opinions and perspectives gained through research, clinical experiences, and lived experiences of Sarah Tuberty, Doctorate of Occupational Therapy candidate and Michelle James, MD. Learn more on About Us.

We invite you to explore the resources and supports in this site developed for you when it comes to raising your child with a CHD.

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 Child Experience

  Parent Experience

 Personal Experience

School Resources

Resources

Pediatric Hand Team

About Us 

       
       

For questions, comments, or concerns please email ncl.chd@shrinenet.org

Page last revised on August 22, 2019.

Patient Referral

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916-453-2111 (Emergency Referral)
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referrals.ncal@shrinenet.org

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